The sweet and sad story behind this photo

Posted at 7:22 PM, Jul 16, 2014
and last updated 2014-07-16 19:28:17-04

(CNN) — Gifts have been arriving at the Steffel home in Kalida, Ohio, every day. Blankets, photographs, paintings.

It started with a simple request that grieving father Nathen Steffel posted to Reddit on Sunday:

“My daughter recently passed away after a long battle in the children’s hospital. She was in the hospital her whole life and we were never able to get a photo without all her tubes. Can someone remove the tubes?”

The image of their daughter, Sophia, connected to breathing tubes is the Steffels’ favorite because it captured her during one of few times she was awake. In the photo her eyes are wide open and she appears to be staring into the camera.

Nathen Steffel said he’s been a member of the Reddit online community for a while and had seen many instances of talented Photoshop work.

He was hoping to get at least one good image. So far, he’s received more than 100 photos, drawings and paintings.

“We’re still getting them today. From all over the world,” he said in a phone interview Wednesday. “I can’t even read what some of them say.”

Initially he responded to each message but eventually it became overwhelming. The responses helped take their minds off things even though most of them were condolences. Nathen Steffel is now in touch with a parent who went through a similar experience.

The couple first learned there was a mass on their baby’s liver during a routine ultrasound.

“They didn’t know what it was,” Emily Steffel said. “They just said they’d keep an eye on it.”

They shared the news with family and friends, and when Sophia Steffel was born May 30 tests revealed a liver tumor known as hepatic hemangioma. The condition is a rare noncancerous tumor linked to high rates of heart failure and death in infants, according to the National Institutes of Health.

Sophia was transferred from one children’s hospital to another and died on July 10. She was 6 weeks old.

“Everyone did everything they could,” Nathen Steffel said.

The Steffels’ story has drawn widespread attention and media coverage, which the couple says will help them explain Sophia’s story to her brothers Tristan, 5, and Owen, 3.

Nathen Steffel’s sister told him she’s comforted by all the attention — happy that Sophia’s story didn’t just end at the hospital.

“We’ll have this memory forever,” he said.